Help for Caregivers
This information is designed for caregivers of patients at end of life
Caregivers often feel they have little time to attend to their own needs. This is especially true in end of life care – care that carries additional burdens of anticipated loss and grieving.
It is critical that you care for your own physical health and well-being. Equally critical is that you connect with family and friends who can support you. Ignoring your needs can lead to health problems of your own, physical and mental exhaustion, and isolation. This added stress makes it even harder for you to care for your loved one at this important time for both of you.
We provide a number of suggestions and resources to help you. Consider those that fit the needs of you and your family. You may have additional responsibilities beyond providing care for your loved one so we offer information on many types of support available to you in the community.
How are you doing?
To begin, take the brief self-assessment questionnaire
(in English and Spanish) that was developed by the American Medical Association and used here with their permission. The tool will help you examine some of the common stressors associated with caregiving and how they may affect you.
Helpful resources
You may find useful resources and coping techniques in this excerpt from The Caregiver Resource Directory.
Our thanks to Beth Israel Medical Center in New York City for their support of this project and permission to use material from their publication, The Caregiver Resource Directory: A Practical Guide for Family Caregivers, 2nd edition. Read more about their palliative care program.
